Home EB Sentinel News EB Sentinel Calendar Volleyball team sets FSHD fundraiser

Volleyball team sets FSHD fundraiser

The East Brunswick High School boys volleyball team will hold its annual fundraising Volleyball Game for Facioscapulohumeral Muscular Dystrophy (FSHD) 6 p.m. May 10 in the main gym at East Brunswick High School, Cranbury Road.

The event will feature the game and sales of FSHD T-shirts ($12) and sweatshirts ($20).

FSHD is the most common genetic myopathy affecting men, women and children. Marked by progressive degeneration of skeletal muscle, it typically manifests in the face (facio), shoulders (scapula) and upper arms (humerus), as well as the legs, and can spread to any muscle, leading to profound disability. An estimated 870,000 people suffer from FSHD worldwide.

Individuals who cannot attend the fundraiser may donate to the cause at www.fshsociety.org/make-gift/ and check the box that indicates an “In Honor Of” gift for the East Brunswick Boys Volleyball FSHD Fundraiser 2016.

The FSH Society helps patients and families through education and outreach, funds scientific research leading to treatments, and advocates for increased government and industry funding for research and to encourage drug trials.


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